SURVEY #1 - RESULTS - done 3/99 in Abington, Pa
Find this page on the web at http://www.directquest.com/Fibromyalgia/Survey/Results1.htm
Please note - this is not medical information - just anecdotal information passed on by
PATIENTS ... no "advice" should be taken from this information without
consulting your Doctor first!!!
What Triggered FMS??? Stress stress stress (Caring for wife & mother/death of
father/layoff/retirement etc) / a fall 14 years ago /not sure / possibly putting
mom in nursing home / not sure but never felt the same after having mono / tonsillectomy
or bulging discs in lower back/ multiple car accidents / car accident triggered the severe
symptoms (mild symptoms since childhood)
When did it start Trigger
event 4-5 years ago /had it all my life / trigger event /not sure ? right after surgery on
tonsils and the discs in my back / had this for over 10 years / childhood - severity of
symptoms triggered by childbirths then more severely by car accident/
To Help :
sleep magnesium citrite or
elavil/ read before bed /sleepy time tea/ flexeril / take your mind off the
pain - watch a comedy show or have fun /flexeril / desiril (trazodone) / try to clear mind
& concentrate on good things / audio tapes/ massage/ tylenol to reduce pain 1
hour before sleeping/
pain alternate
advil & naprosin / move slowly & frequently /massage /Watsu/swedish
massage/ warm water exercise/ exercise & pool therapy / tylenol /zoloft / ignore them
/ massage /tylenol/ massage/
stiffness heat / bio- freeze / exercise
& pool therapy /
water aerobics or walking in water/walk up to 2 miles a day when I can / stretching/
flexing muscles slowly / pool therapy/ exercise /
mood/attitude keep busy - work with
lists / find ways to stay organized as you have less tolerance for things / valium &
prozac/ talk about it with others/ try to accept that yopu have it/ keep calm / staying as
active and as busy with happy things as possible
Name 2 things that they CAN do to earn money
Computer work / telephone solicitations / computer writing editing / web design &
sales/ become a sales rep for any good product that you believe in and think is
marketable- make a deal with the manufacturer or seller for a % of each sale.(Not
servicing accounts) This is something you can do at the times you feel good
& NOT do when you don't.
Please reccommend 2 books that you think everyone with FM
should read
Fibromyalgia Arthritis Foundation /The Fibromyalgia Handbook /
Fibromyalgia Survival Manual by Starlanyl
What medications or natural supplements have you found
helpful? magnesium/ elavil /
vitamins/calcium/b-vitamin St John's Wort /ginko bulova/ginseng / flexeril/valium/advil/
flexeril /zoloft/deseril/ lodine / grape seed extract / mega-multi-vitamin /ginger /
St John's Wort/ elavil / naprosin/ vitamins/ magnesium
PLEASE LIST ON THE BACK OF THIS SHEET SOME QUESTIONS OR ISSUES YOU
WOULD LIKE TO SEE ADDRESSED AT ANOTHER MEETINGS OR IN ANOTHER SURVEY (AND SPECIFY WHICH
ARE FOR MEETING & WHICH FOR SURVEY)
What works for restless leg syndrome ?
Are Chiropractors harmful ?
Fibro-fog & short term memory loss ?
Area resource list??- Doctors/ chiropractors/ massage therapists/ acupuncturists / watsu
/etc
back to main Fibromyalgia Page
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